I will be back to go through all the recommendations (Thank you!) and to catch up some time next week. We put off the move to NJ because of Sandy, so the three of us–Krissie, Lani, and Jenny, together again–will be on the road come Thursday. In the meantime, I’m still going through sixty-three years of stuff here and throwing things out like mad, sending the rest to Goodwill, including well over a thousand books (I don’t think I’ve ever gotten rid of a book in my life so they were everywhere). We moved up the date because the dry AMD in my right eye turned to wet AMD about three weeks ago, which ups the chances of the same thing happening in my left eye, at which point I won’t be able to drive. So we move now. Stay tuned for posts on low vision coping devices and how to write while rehabbing a cottage, coming some time in the last half of the month. And thank you again for all the book recommendations; this is going to be fun.

25 thoughts on “Update

  1. I had to step away from Re-Fab for awhile because of my own personal stresses, so I’m going backwards to catch up there, but I just read your last post. Best wishes with the move. You know we all are behind you in spirit.

  2. I’m sorry about the change with the AMD. That’s scarier yet than throwing books away.

    I’m glad that you have such a good family, and best wishes for your move.

  3. Wishing you better times with everything, but especially the AMD.
    Keep safe.
    Thinking of you and your sister. You’ll have a blast together 🙂

    1. Interesting article ChelSierra. I see he uses a typist. I am hoping for a program that would allow me to upload the audio directly into another program that would transcribe it. I don’t know if Dragon would do this with the right equipment. I do know there are accessibility options on my Mac for dictation. If anyone has used these, I’d be interested to know what they think of them. We have Dragon here, but it is an older version, and I think ours is for Windows only.

      1. You can check out the reviews at Amazon.com to see what they have to say. I know when I did a search for digital recorders, Dragon popped up as the item that was also bought by the buyers of the recorders.

      2. There is a dragon version for mac. The latest version is markedly better than previous iterations, but I use it pretty much never, because earlier versions were spectacularly frustrating and the vendor was a pain in the butt to deal with. There may be alternatives – I’m not sure.

      3. Dear Jenny,

        I have low vision myself and there are a lot of good AWT (Assistive Work Technology) programs out there. Check out MAGic and JAWS from American Scientific. MAGic lays an all over magnification on your computer screen, with adjustable magnification and color reversal (black background with white letters) if you can’t deal with glare. JAWS reads the text to you. ZoomText also has similar features. I use these on a PC but they may be available for Mac. Also, Dragon is available for Mac and I believe you can use a bluetooth device to dictate into. Finally, you probably know this, but iPhones and iPads both have accessibility features to allow you to magnify the screen, as well as color reversal. You can also use the camera (with magnification and/or color reversal) to read documents such as menus and prices when you shop. I think you can get apps to interact with Dragon and also to read the text on the phone to you. Don’t know how much you magnification you need, but it is good to have options.

        Best of luck with the move and with getting settled in a new place.

  4. It’ll be like New Year’s came eight weeks early! A fresh new slate, and a 1000 books lighter. (Which means you still have about 19,000, right? LOL!) Somebody said, “It’s a process,” (-: so one bird at a time. You guys’ll have a much better time now that you can do it together!

  5. Road trip! Moving is aggravating and vision issues are terrifying, but a road trip with your besties can’t be beat. Traveling mercies and hugs and love!

  6. Great work!! My mother (who moved a number of times over the years) always said that the only really good thing about a move was that you were forced to sift and sort (particularly if you downsized). Of course, the bad thing about it is: all those damn cartons that sit unopened for years afterwards!

    I have been slowly but surely weeding out my stuff. I have at least halved my clothing stash in the past few years. Still too much, but, well, bird by bird. Every season when I swap the summer stuff out for the winter and vice versa, I tried to offload a few things.

    My book problem has been solved by something we have here in Bonn which is really, really cool: “public bookshelves”. An initiative (basically started by a friend of ours years ago) to support book swaps. Some are small (near the university, a smallish one with glass doors to protect the books from the elements), in the Godesberg district there’s a whole “room” — a little glass building that was apparently once something like a ticket office or tourist info office, now lined with bookshelves and with seats inside. There are volunteers who periodically pop by and organize or weed stuff out. You bring books and drop them off, find books to bring home with you and read before returning.

    I often drop books off when I go down near the university for shiatsu — often when I walk past the bookshelf on the way to the train station after my massage, most or all of the books have already been picked up by someone else.

    I picked up a huge stack of old Georgette Heyer’s (in English too!) from there when someone weeded out and I was sooooo thrilled. I assume others are equally happy to snap up my “rejects”!

  7. We had ‘help’ throwing stuff out of our basement a few years ago when it flooded. It’s not the way I wanted to do it but it was one method. My new method is to throw away/ move out of the house an extra bag every week. This week it was 3 grocery bags of clothes to Goodwill. Last week it was crap out of the basement. We’ll see how this goes for a bit. I wonder if anyone else in my house will notice;)

  8. There are so many aids to assist with AMD that I was incredibly surprised to find them. The most amazing things are actually the easiest and just require a bit of organisation. My mother has been living with severe AMD now for 2 years, the first year not admitting what was happening and then the second fast tracking the learning and getting her head around it. The easiest things are getting stuff in contrasting colours to differentiate areas (black placements, white plates)(white placements, black plates for sandwiches). Sticky raised dots to place on appliances for preferred settings. The orthoptists have been wonderful in giving us ideas. I’ve even learned just how much easier an ebook is to read with the black background and white writing, than the normal black on white. It was frightening and unsettling, but she’s doing fantastic lately and has just set off on her first holiday since getting the disease. She’s having a ball and yes, it did require some assistance from the airline with getting on and off the plane and locating her seat and stuff, but the joy in her voice when we heard from her about the things she can do, rather than the despair from before is very heartening. I’m very, very proud of her. I’m sorry to hear that this is happening to you as well, but I thought I could let you know that there are others living with this, learning to cope and still enjoying their life, just perhaps in a slightly different way.

    1. This is wonderful to hear. Thank you so much.
      I’ll be putting dots on my stove when I get my new stove. I’d already figured out butcher block countertops since all my dishes are white.

  9. Glad you didn’t move down during the supersoaker storm. Not glad to hear about your eyes. I don’t check refab often enough to stay abreast of the details so don’t know if you’ve shared treatments you’re getting, but a friend of mine gets a shot or something in her eyeballs every three weeks. Not fun but she can see. But I don’t know her details. when I got my LASIK, she volunteered to drive me, in sympathy.

    I’m a fan of bright lettering on black – on my work computer I use neon green on black. It stresses my eyes out less than black/white. I suspect I have something like Irlens syndrome because my eyes are kind of spastic but will calm right down if I pick good color combinations. It’s one reason I’m keeping the eInk kindle – their colors mimic newsprint which I find comfortable to read.

    If you were going deaf, I would have more suggestions. But it’s said that going blind cuts you off from things while going deaf cuts you off from people. Since you’re getting rid of things, hey, head start. You’ll probably need the best phone plan though. And I know of st least one company in silicon valley working on tech to make touch screens tactile. Like when the phone keypad shows up, you’d get bumps where the keys are that you can press to activate. Don’t know how soon it will be available but someone’s working on it. Best of luck.

  10. Please Lets revisit Maybe This Time..Please..Pretty Please So Much to Know..So Many Great stories in your head Jenny : ) I read all your Books 2x..Just BC..I love Them…And Happy Thanksgiving To All Susan..Vermont

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